Traumatic Brain Injury and Spinal Cord Patients can Develop Ease of Living Space

Traumatic Brain Injury and Spinal Cord patients require several unique adaptations to revamping their everyday living environment to facilitate the disabilities they have experienced. One of the several obstacles they face is how to undertake a redesign of their existing space economically while making the home capable of accommodating their needs.

Dave Ward, a quadriplegic at age 30, redesigned  his 1855 Historic Home to fit his needs and estimates that today it would cost approximately $9,000 to replicate the revisions he made. Following is an interview he gave to NPR in text format and a link to the audio version.

“Dave Ward is the resident curator of the place he calls the Future Home, a house that he has turned into a model of “universal design.” It’s the idea that where we live — and the technology and products we use — should be designed so they are easy to use for anybody, including a quadriplegic, like Ward or an elderly person who’s frail or has cognitive disabilities.”

The Future Home is in the middle of a state park in Phoenix, Md., about an hour north of Baltimore. The house is historic, but it mixes the old with the futuristic.

“This house was first built in 1855,” Ward explains, “It was built as a tavern and inn, and it served the horse and buggy trade that traveled from Baltimore to Harrisburg, Pa.”

Back then, this big, white building was known as Smith’s Tavern. It’s right up against the old toll road. Today, on the long wraparound porch, the music of the wind chimes competes with the noise of the cars rushing by.

“Horse and buggies didn’t make as much noise as cars do,” Ward says.

Ward became interested in universal design by necessity. In 1977, at the age of 30, he became a quadriplegic after a fall.

Ward lived in this house before his accident. Now he has redesigned it so his personal-care attendant can live upstairs. The downstairs, where Ward lives, is a showcase of universal design, built to allow him to live as independently as possible. But he’s also made it a model for other disabled people as well as the elderly. Architects, designers and consumers come from around the world to see Ward’s house.

He starts the tour outside, at the main entrance.

“If we’re talking about access or universal design or home modifications, it all starts outside,” says Ward. “One of the things that’s real important for people is a place to park their automobile, and then to get from that mode of transportation to the front door without any barriers. In most cases, those barriers end up being steps.”

When Ward redesigned this place, he moved the main entrance to the back of the house, removed the stairs and added a smooth path that leads from his parking spot to the door.

The entrance uses a number pad instead of a lock-and-key system. With the pointer that he keeps attached to his hand, Ward can punch in a security code and the automatic door swings open.

Ward’s personal attendant pushes his wheelchair into the kitchen. From a remote control on his wheelchair, Ward pushes a button to turn on the lights.

“The kitchen is built so it has multiple-level work surfaces,” he notes.

Varied surface levels allow people to work standing or sitting.

“Many people can’t stand long enough to do an entire task,” he says. “For example, cooking or washing dishes or cleaning vegetables. And they want to sit.”

So there are two sinks on the blue and pink kitchen island in the middle of the large, square room. One sink is at standing height. The other is a few inches lower, for sitting. The stove top, too, can be raised or lowered to just three feet off the ground. And the cabinet of dishes comes down like an elevator.

A lot of things in Future Home move at the touch of a button. Curtains can be opened and shut by pushing a button, and a long coffee table can be raised until it becomes the dining room table.

Ward says the technology already exists to do all of this. It’s just that people don’t think of putting it in a house.

“Well, think about your car,” he says. “You’ve got climate controls all over your vehicle. We have voice control over many of the things in the car itself. We have powered windows within the car. We seem to find a way to cram that into a little vehicle, yet we haven’t looked at our own homes to think about how important it is to have the same thing there.”

Ward works in his home office as a consultant on design and on various state disability commissions.

“My favorite part of the house is probably the study,” he says. “Everything I want is within my reach in this part of the room.”

His computer is programmed to respond to his voice commands. By speaking, he can control his environment.

“Listen to me,” he commands; the computer turns on.

“Main Menu,” he says, and the computer talks back: “Okey Doke,” says the synthesized voice. Then Ward can give commands to close the shades or turn on the fan. For the television, all of the controls that you’d find on a regular TV remote control appear on his computer screen.

What would his life be like if he didn’t have a house full of all this technology?

“Well, I can tell you, because I lived it for quite a while,” he explains. “Coming home from a rehab facility, moving back into Mom’s house, it was, ‘Mom, can you take me outside? Mom, can you bring me in? Mom, can you turn the fan on? … On and on and on. Can you imagine what kind of pressure that is on an individual and how simple the technology is that we were using today to do all the things that Mom used to do for me?”

The devices add to the cost of a house, but Ward says it’s not as much as you might think, especially as more companies make more of these devices. Ward says when he built the house 14 years ago, it cost about $46,000 to put in all these devices. He says the same systems could be installed today for just a fraction of that — for less than $9,000.

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